3 steps to make life with distal spinal muscular atrophy type 1 manageable
Distal spinal muscular atrophy type 1 is an ailment that has no permanent cure. It is an inherited condition that begins in infancy and is characterized by muscle weakness that ultimately results in respiratory failure. Distal spinal muscular atrophy type 1 is often diagnosed between the ages of six weeks and six months; the child diagnosed with this condition, unfortunately, doesn’t survive for more than two years owing to the respiratory issues it faces. This condition arises when the child inherits two copies of a broken gene from each parent, and this broken gene acts as a hindrance in allowing the body to create proteins, without which the cells controlling the muscles die. Children diagnosed with distal spinal muscular atrophy are often at risk of developing further complications, and the very fact that the condition doesn’t have positive prognosis is indicative of its severity. As mentioned earlier, distal spinal muscular atrophy type 1 cannot be cured. However, certain steps can be taken to ensure that the child diagnosed won’t face a lot of predicament. Choose the best for your child You have to come to terms with the fact that your child would not be leading a normal life like other children, and would require constant medical attention.